Patients
You are not alone. The kidney you need is out there.
Finding a Living Donor
Searching for a donor isn’t just about asking for an organ — it’s about sharing your story and inviting your community to be part of a life-saving miracle.
Three strategies for finding your donor
1
Spread the word.
You don't need to ask anyone directly for a kidney, but you do need to let people know that you need one. Share your story in your community, in your congregation, and through social media. The more people who know, the more likely it is that someone will step forward.
2
Identify a Living Donor Champion.
A champion is someone close to you. It can be a spouse, partner, a sibling, a close friend, or a fellow member of your congregation. Most importantly, it’s someone who advocates on your behalf. They spread the word among your family, friends, and community. They learn enough about kidney donation to answer questions from people who might want to consider it. Your job is to focus on your health. Your champion's job is to help find your donor.
3
Broaden your ask.
Most patients searching for a donor make the same mistake: they ask for someone with a specific blood type. With paired donation, that unnecessarily limits your pool. The right ask is broader.
Instead of: "If you have O+ blood type, please contact us about donating to [name]."
Try: "If you or someone you know with ANY BLOOD TYPE is willing to donate on behalf of (name), please reach out. Your willingness can save their life."
Questions to ask your transplant center
When you are evaluating a transplant center, the most important question you can ask is also one of the simplest:
"Do you have a kidney paired donation program? Do you work with a national kidney paired donation program? Do you work with a national living donor facilitating organization?"
The answer can help you and your medical team understand what options are available to you. Every transplant center makes its own decisions about which programs to participate in, and your care team is best positioned to walk you through what that means for your specific situation.
How TSOL Helps
To Save One Life mobilizes faith communities — and that is how we help you.
When congregations across the country educate their members about living kidney donation, awareness grows.The more people understand kidney paired donation, the more people consider becoming living donors. And the pool of willing donors expands — for you, for your loved one, your fellow congregant, and for the nearly 95,000 Americans currently in desperate need of a kidney transplant.
If your congregation is not yet a To Save One Life partner, help us connect with them and provide everything they need to educate your community about kidney donation. Sometimes one person's need becomes the catalyst for a community-wide conversation that helps far more than one family.
The faith community is already built on the foundations of compassion and stewardship. Our campaign is the place where faith communities mobilize and educate to end the kidney shortage. When people have the information, some will choose to act on it.
Resources and Living Kidney Donor Facilitating Organizations
We invite you to visit the following resources and organizations to learn more about the living kidney donation process and how you can get the support you need.
Additional Resources
Frequently Asked Questions
about Living Kidney Tranplantation
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Eligibility depends on physical health, emotional well-being, and the ability to manage post-transplant care plans. Age in itself is not a barrier, as many people in their seventies and even older receive kidney transplants.
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The best time to have a kidney transplant is before you start dialysis. We call this a preemptive transplant. Most of the time this can be done only if you have a living donor. To do this, you need to contact a transplant center when your kidney function (glomerular filtration rate, or GFR) is at about 20 percent. The transplant will typically occur when your GFR is between 10 and 20 percent.
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Evaluation includes medical tests to assess overall health and kidney function. A good time to start looking for a living donor and begin evaluation for transplant is when your GFR is between 20 and 25 ml/min.
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The UNOS wait time varies depending on the availability of a compatible deceased donor kidney and is typically three to ten years. Waiting times in the United States vary by region, with some areas having much longer waiting times than others. Patients with a living donor can avoid or minimize the time on dialysis.
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This is one of the most difficult and yet important parts of preparing for a transplant. As you go through your transplant evaluation process, you will hear multiple times, “you need to find a living donor.” How do you do that? There are multiple strategies that have been proven successful:
Identify a Living Donor Champion. This is someone, who is close to you, who can spread the word amongst your family and friends that you need a living donor kidney. It is typically a spouse, a close relative or a friend. They need to educate themselves about kidney donation so they can answer questions of people that might be interested in considering the donation.
Spread the word. You don’t need to ask anyone directly to consider giving you a kidney. But you need to let people know that you need someone to donate a kidney for you to avoid years on dialysis and return to health. Your most likely donors are going to be people who know you well, like family members and friends. You can do this with an open letter, an email, through a microsite arranged by NKR, or through social media. NKR also offers mentors who help those needing a transplant navigate the experience.
Do not turn people away. It is always hard for a parent to accept that their adult children might be the best donor for them. You need to accept that they are adults and can decide for themselves. Kidney donation today is very safe and they will also benefit from the joy of having a healthy parent who will likely live a long time. So, their donation is also a gift to themselves.
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Kidneys are matched based on blood type, tissue type (HLA), and eplet matching. A crossmatch test is frequently done to check for antibodies in the recipient’s blood that could cause the recipient’s immune system to reject the transplanted kidney. We also take other factors into consideration when matching a donor and recipient, such as age, size, and viral serologies.
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Medicare, Medicaid, and most health insurance policies cover transplant costs. Recipients meet with a financial counselor during the evaluation process.
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The surgery is performed by the transplant team, which includes a transplant surgeon or surgeons, surgical assistants, nurses, and technicians. Postoperative care is usually done with a team that includes surgeons, transplant nephrologists, nurses, pharmacists, social workers, and dietitians as well as other specialists.
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Kidney transplant surgery typically takes two to four hours.
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After the surgery, a typical hospital stay is two to four days. Most transplant recipients can return to normal life within four to eight weeks after the transplant. A lot depends on the physical condition of the patient prior to the surgery. It is important to try to stay fit while awaiting kidney transplantation.
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Some pain is normal after surgery. You will get medications to manage it. Your doctor will specify some lifting and pushing restrictions for about six weeks.
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You will need to take immunosuppressant medications for the rest of your life to help prevent your body from rejecting the new kidney. Otherwise, you should have a very good quality of life with relatively few restrictions.
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Kidney rejection is usually silent at the beginning. And it is important to catch it early, before it damages the kidney. This is why we monitor your kidney function through lab tests. The tests are done frequently at the beginning, and they are spaced out as time from the transplant passes. During your pretransplant evaluation, the team will assess your ability to keep up with these requirements. It is a crucial factor that will predict your chances for long-term success.
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You will need regular follow-up appointments and blood tests to ensure the kidney is functioning properly and to monitor your overall health.